Funds and philanthropic tools
Fund Léa Rose
Scientific research into Spinal Muscular Atrophy (SMA) and related rare diseases Projects that help improve the quality of life of patients and their families can also be considered.
What is it about?
The Fund Léa Rose Fund was established in memory of Léa Rose, who died from the effects of Spinal Muscular Atrophy (SMA). The Fund aims to support research into this and related rare muscle diseases. To this end, it collaborates with the World Muscle Society, which awards a ‘Prize Fund Léa Rose’ at its annual congress to a promising research project or researcher in the field of SMA. In addition, projects that improve the quality of life of patients and their families are also eligible for support.