Publication
Working together to set research priorities for Tuberous Sclerosis Complex
31 05 2018
Results of a multi-stakeholder dialogue on the priorities in research on Tuberous Sclerosis Complex (TSC)
What is it about?
Report resuming the results of a multi-stakeholder dialogue around the priorities in research on the rare disease Tuberous Sclerosis Complex (TSC). Why was this necessary? How did we proceed? Which 15 research questions emerge as most priority? Which other needs and needs of patients were defined?
This publication is also available in French and Dutch.
Authors
Peter Raeymaekers
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Wetenschapschrijver - LyRaGen
Whole Systems
Wetenschapschrijver - LyRaGen
Alain Wouters