Funds and philanthropic tools
Fund Vlinderkindje
The Fund wants to stimulate medical scientific research into Epidermolysis Bullosa simplex with priority to the Dowling-Meara variant. Helping to improve patients’ quality of life.
What is it about?
The Fund aims to support global research into the rare skin disease 'Epidermolysis Bullosa simplex', with priority given to the very rare variant Dowling-Meara. The Fund also supports initiatives that improve patients' quality of life. Children with Epidermolysis Bullosa are also called "butterfly children" because their skin is as fragile as the wings of a butterfly.